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Are we sexier?

Oh the perks of having migraines... they are so plentiful, well not really, but this artcle mentions one interesting affect. First of all some of us experience a higher sexual libido as a migraine aura... which I have noticed as an effect of my 'manic' migraines, where really my energy level is totally spiked. And then there is the fact that an orgasam is god's migraine abortive... and that is also true, sometimes, other times it can increase the pain... but I say go for it (assuming you are of age, and if not block this from your mind), since at the very least it is a darn good distraction.


Migraine Sufferers: Are they sexier

How to survive the holidays with chronic pain

1) Consider your options: Choose the events that you wish to go to, and make lame excuses for all the other ones.

2) Consider distance: When choosing Christmas parties always consider the distance to and from the said event. Just because you can get somewhere does not mean you will be in any shape to get back.

3) Conisder beverage choices: As in no booze. And trust me out drinking a migraine backfires with a uber migraine that cannot be treated.

4) Consider your shopping methods: Malls are horrible. Full of mobs, noise and so forth. And then there is getting there and then the walking about. So use the internet... it is your friend.

5) Consider which relatives you like best: Family are great, but lets face it there is so much of them. Your not Santa Claus, you cannot zip around at the speed of light to see everyone. So pick your favorite relative, or the one that cooks the best meal and go there. Never host a family gathering, because that is just a slippery slope of hous…

Side Effects: Steve Martin

Side Effects
by Steve Martin

The New Yorker
April 13, 1998

DOSAGE: take two tablets every six hours for joint pain.

SIDE EFFECTS: This drug may cause joint pain, nausea, head-ache, or shortness of breath. You may also experience muscle aches, rapid heartbeat, and ringing in the cars. If you feel faint, call your doctor.

Do not consume alcohol while taking this pill; likewise, avoid red meat, shellfish, and vegetables. O.K. foods: flounder. Under no circumstances eat yak. Men can expect painful urination while sitting, especially if the penis is caught between the toilet seat and the bowl.

Projectile vomiting is common in thirty per cent of users-sorry, fifty per cent. If you undergo disorienting nausea accompanied by migraine and raspy breathing, double the dosage. Leg cramps are to be expected; one knee-buckler per day is normal.

Bowel movements may become frequent-in fact, every ten minutes. If bowel movements become greater than twelve per hour, consult your doctor, or any doctor, or ju…

Migraine art- Olea Nova

Olea Nova-Migraine art- while the artist is painting based on research and interviews with people with migraines, I do find her paintings interesting. Sometimes it is simply impossible to express things in words. Words become limiting and even at times self-concealing.

Dancing on thin ice

You know it all circles around. I have made numerous compramises for this chronic pain, many career changes, not continuing my academic studies. You always get to that point where you are forced to alter your life because of your health... until you become a hermit. And it is always difficult, but in the end you put up with it because the change is benificial, as in less suffering. I really thought I would not have to do that again, because I landed a job that is desk work, no shift work and while interesting does not require the full capacity of my intellect on a daily basis, so typos and completely unreadable handwriting asside, I can still do my job effectively with a mild to moderate migraine. Certainly I had less troubles coping when I had abortives. It was all down hill without the abortives. If becomes exceedingly hard to cope when you cannot get rid of the pain or the aura symptoms. It rapidly goes from problamatic to impossible, no matter how hard your doctors scrambl…

All the misc stuff

Not everything has to do with migraines. Some of that neurological jumble is the FMS, much like the migraine aura stage. So when I forget the names of objects, mis words up, transpose letters and numbers, confuse left with right... that is all actually the FMS. Sometimes I can not tell if it is a migraine coming on, or just one of those days. Some days I find it difficult to pick out voices if the back ground noise is distracting and sometimes a migraine aura is my hearing becoming muffled.

Here are the areas FMS effects:

Sleep disorders (e.g., restless leg syndrome, sleep apnea)
Gastrointestinal (e.g., abdominal pain, bloating, gas, cramps, alternating diarrhea and constipation)
Numbness or tingling sensations
Chronic headaches (may include facial and jaw pain)
Heightened sensitivity to odors, loud noises, bright lights, various foods, medicines, and changes in weather
Painful menstrual periods (dysmenorrhea) and painful sexual intercourse (dyspareunia)
Frequent urination, …

Ah, the migraine made me do it

The migraines, which are more sudden but not as long lasting since the daily arthotec dosage, have been messing with my head. I get these ideas to do things in the middle of the night, that seem rather odd in the morning. And I have been quite befuddled in the morning, because due to my random activities, have not been sleeping. So befuddled, confused, drunk looking, stumbling and not seeing very well.

It had been a bad few days with the whole not smoking thing combined with the weather thing plus the horrific hormonal migraine thingy... all conspiring to make me have a nervous breakdown because I am not par on my work performance lately, the more I try to be, the less I am and the less I want to take that promotion the boss seems inclined on pushing on me. So I have a appointment to chat with her tommorow whereby I will apolagize for something I cannot control, express my firm and earnest desire to be present and functioning and still manage to feel both useless and as guilty as …
Cortex area of the brain thicker in people with migraine article

Yes, it seems my brain may be thick on the surface, perhaps why nothing sinks into it. It is a common fear of people with migraines, because of the craziness of the neurological symptoms, to wonder if there is any damage going on from the constant assult of migraines. The seizure activity, the excitation of neurons, is not as intese as epilepsy, but at the same time you wonder how that affects your brain over time. And it seems it does and may show a connection bwetween migraines and comorbid pain conditions like FMS.

Anyway, all I can say, is when I got my cat scan my doc said my brain (cortex) looked smooth, as in younger than my age, which I found oddly flattering really.

A study published in the November 20, 2007, issue of Neurology®, the medical journal of the American Academy of Neurology, indicates that people with Migraines have differences in part of the cortex, an area of the brain that helps process …

The emotional migraine crap

The prodrome (pre-migraine) phase is not all that bad usually. A little yawning, craving of chocolate and carboydrates and some neck pain. It is prior to the aura, which is obviously more annoying and spectacular in its variety. But sometimes the prodrome is a bitch. In particular the mood swings. It is either all the way one way or the other. The euphoria side (jittery, trembling, nervous energy, extreme insomnia, but elevated mood in a almost manic sort of way) is not all that bad... not really going to complain about a neurological high, when it helps get you through the day. The other side of the spectrum is far from pleasant. A all consuming, prodoundly deep and spontaneous depression. Hits you so hard you can't see it coming, while you are aware that it is highly deeper than would ever naturally occur, at least not without a darn good reason. You have to sjake it off like a blanket. And the fatigue that comes with it can drag you like lead. Anyway, I would not re…

Living between that rock and that hard place

Somehow, I have ended up exactly where I was and that is not the best place to be. I can rant and rave about not having effective migraine treatment, but when it is all said and done the doctors do what they please and every once and a while I am good for about six months before it all goes down the crapper again.

Essentially, my position is missing work, getting fired and being very poor

OR

a crap load of pain tolerance, weak meds, working and training for a more stressful position.

Obviously, neither of these options is good. What I would like is to maintain the job I had before my medical leave, possibly with a decrease in hours (a shorter work day, even if it means a shorter lunch), no training for a new position at this point in time and medication that is half-assed benificial to help me get to work. Unfortunately, that is not one of the options available. So, basically I have to keep going to work, no matter the pain, taking too many OTC meds and risking serious rebound …

I'm broken

I had an imensely bad day at work today, from the very start to the very end. For some reason I also found it very emotionally upsetting, when usually I just let this sort of thing roll off me. I think possibly it was not just the pain of the migraine, but the prospect it is going to continue like this with no relief for the indefinate future that got to me. Got to me good as well. I am not the sort for public displays of emotion, as I find that entirely embarassing, but I was brimming with tears for a good few hours, trying to distract myself from that thundering realization and the pain.

The day started with my being late for work. After hitting the snooze button a few times for some reason I turned it off, but realizing this I turned it back on... but of course it would not ring again after that, yet I thought it would. So you see, that is a bad start. The migraine was there from the moment I woke up, but I thought it was a tolerable amount of pain to endure until after work…

My bad mood is intensify with the pain

Bad mood turning into frustration and a bit of the 'why me' blues and some 'When will the pain fricken end today. I am in so much pain now, from fighting all day with semi-successful pain killer and then moving onto not at all successful ones. I am not sure I am going to be able to sleep.

I have tried two T3 to get me to work half way, then for the other half I turned to four Tylenol and three advil at migraine strength. And now I wish I could bash my head against the wall, it is so friggin intense. My eye sockets feel like they have been gouged out, the ligh sensitivity was bad but now diminished, my hearing cut out then came back with a piercing ringing in them. My chest hurts with piercing pain, which is not angina, but might be from the smoking patch...as it did not like me and vice versa. The back of my neck is killing me, with spiking pain upward when I move. Or spiking pain from the left to the right when I move. Trying not to move my head. When I l…

Migraine connect: For those that do not get it letter

We all get people who do not get it. And when you are struggling with treatment, work and the pain, the last thing you need is people not getting it. Sometimes it is the boss, I have a great one, but she is getting as fustrated as I am that we cannot resolve this treatment satisfactory fast enough. Sometimes it is a co-worker thinking you are using 'headaches' as an excluse... I thin k my co-workers are great, but they also are stress by now knowing when I will be at work and working for me. And sometimes it is actually the spouse who does not get it, which I also do not have thankfully, because I believe that would be the worst. Also doctors can not get it, they can be mis-informed and they can think you need a shrink or lower your stress. So this letter is for them all, give them the facts.

These are the key points in the letter, followed by the web link to it (that site is awesome for support and information.)

"Based on the most recent U.S. census statistics, Migr…

New York Times migraine article

An interesting essay and rather reminds me of me, except I have tried many more drugs and concoctions. It is a good thing to see though, an article written by someone who actually has chronic migraines. It helps with awareness of this disease and so people can comprehend it can be something that is chronic, difficult to treat, life altering and not just a 'headache'.

Migraine Diet

Earlier this week, I went to see my neurologist, who for months has been trying to get me to increase my dosage of amitriptyline or go on topamax, an anti-seizure drug that also prevents migraines.
“Are you enjoying your suffering?” he asked me.
Eagerly pocketing my topamax script, I asked him if he thought that food elimination could hold out any last hope.
Maybe, he said, smirking down into his notes; you never know. “You could always go up to Baltimore and ask Dr. Buchholz.”
Many people who take daily medications come at some point to hate them. Teenagers with ADHD routinely rebel against their meds…

Women, migraines and brain activity- Aug 15/07

Take a look at this:

Click here... article

Women may get more migraines than men because their brains are quicker to release the trigger that begins the migraine cycle.
Women are three times as likely as men to suffer from migraine headaches, and a new study suggests the reason may be that their brains are faster to activate the cascading waves of activity thought to cause migraine pain as well as other migraine symptoms. Researchers say migraines were once thought to be caused by constriction and dilation of blood vessels. But advances in brain imaging technology now suggest that migraines may start as a result of brain excitability. People with migraines show dramatic waves of brain activity that spread across the surface of the brain -- known as cortical spreading depression (CSD). This depression is thought to trigger not only the severe pain associated with migraines but also the visual symptoms, dizziness, and difficulty concentrating often associated with migraines.
In a study publi…

Botox- July 8/07

I can say one thing about botox for migraine prevention. It certainly does not work right away. I am not about to give up hope that it will work, but lets just say so far I have been enduring three days of nasty migraines. If you say 10 is the worst migraine I have ever experienced, then I have been on average a 7.5 these last three days... well beyond functioning. So no decrease in intensity so far nor even frequency.

If you are curious how getting a neurotoxin injected into your head muscles, rather than say directly into the brain, would have any effect on migraines there is actually no clear answer. I can understand how certain drugs affect migraines... affect the excitation of neurons firing and then the inflamation of blood vessels. But botox? Don't get it. Maybe for tension headaches. Anyway here is what I found about the how:

"Why does it work?Based on the mechanism of action of Botox, it is unlikely that anyone would have thought to try it for migraines. Its …

Botox in the brain- July 6/07

So getting needles in the head is decidedly unpleasant. Who would have thunk it? But I am not afraid of needles or minor fleeting pain. I am no sissy girly. Okay, I did cry a little and there was some begging for mercy, but other than that, super cool.

So looks like I am going to have a numb forehead for six months. Even if you scare the jeejeebee's out of me, I will not look suprised. The neuro warned me explicitly not to rub my head in the next 24 hours, or a might push the botox down and thus have an eye lid drooping for three months... not a sexy look on anyone really. And this makes me a little paranoid about sleeping... given I smoosh my head into the pillow and toss and turn erratically all night long. I just might wake up with drooping eye lids and an ear at my chin.

The neuro said we should see results in two weeks, although I should see some change by the time I go back to work. He said it works on 3 out of 4 people, although not everyone can afford it (400 buc…

Basilar artery migraines- June 2/07

I am curious as to whether I am getting migraines of this type. It is one of the more rare ones, so not likely. Still makes for an interesting post, there are types of migraines and types of treatment, always a good thing to keep in mind. I was originally diagnosed with transformed migraines, because of the changes in symptoms and varying intensity of attacks, as well as increasing frequency. Which makes a lot of sense when you consider the sleeping disorder I have. However, it does not make much sense when you consider the whole angina chest pain symptom or the loss of consciousness episode. Nor even some of the more profoundly neurological migraines I have had, since generally you are looking for a decrease in symptoms overall, not an increase in some and a randomness to others.

Basilar artery migraines:

"The neurological deficits accompanying BAM usually include partial or total greying or loss of vision, disturbances in oculomotor function (such as double vision), verti…

Types of Migraines - May 25/07- My personal classification

I have an aura so bad right now I have lost the vision in half my left side. It is a warping, flashing, twisting light. I rarely get auras this intense. Although once in awhile I will lose sight in one eye, for about fifteen minutes. When this one started it was just at the lower left of my visual field, and I kept looking that was because I kept thinking I saw something move. Then it expanded and I could see the sparkling edge of it throughout, as well as this flickering and liquid part of it on the left. With an aura like this, it would be a very good time to take an abortive. Pity I do not have one. We will see what kind of dent these painkillers have on this type of migraine.

Let me educate you on my types of migraines. There seem to be certain types that hit me and I have personally made my own classifications.

1)The migraine without aura- Mild, moderate or acute. Can have any of the other symptoms (nausea and light sensativity) or none at all. Tends to grow in strength slowly ov…

Short term disability leave- May 25/07

The leave of absence I have been trying to avoid at work, is, well, here. Which is a really good thing considering the whole inability to sleep thing, the midnight migraines and the not so pleasant nausea I have going on. As soon as I can arrange to get the botox injections I will be set and hopefully they are covered on my plan. Just in case you are looking to get botox for other reasons, it costs 400-500 for the botox and my neuro said for cosmetic botox they tend to charge about a 100 bucks to inject it, but since he does it for medical reasons he does not charge. I still need to set up a chiro appointment and... remember to go to it. And I still need to get my hair cut... again remembering the appointment helps. And just because life is like that, I also need to make a dentist appointment asap, since I have some killer pain in one tooth. I speculate it is a cavity, but since I have never had one I can't be sure, just going on that theory due to the pain.

Now I have fill…